D-Day

Today, November 15, 2017, will be marked as one of the most unforgettable days in my life. A day filled with nervousness, anticipation, wrong notion, but ended up with a good result. I will tell you what I mean later but first, let me tell you what happened to me the last few months.

My Accesses
Due to the rapidly increasing level of creatinine in my blood, my doctor instructed me to undergo an AV Fistula creation procedure. He gave me the request and I went to the referred doctor immediately – Dr. Jose Yamamoto. As far as I know, this doctor is very popular and has a big name in the medical field. He is a cardiothoracic surgeon. According to what I’ve heard, he was one of the first doctors to perform a heart transplant in Asia. My Fistula was created last October 4 on my left wrist.

For curious people out there, an AV fistula is created (In layman’s term) by “shorting” your vein to your artery. This will force your “shorted” blood vessel to get bigger and larger so that it can withstand the big hemodialysis needles. So there’s no tube, hose, or anything foreign inserted in the body contrary to what others say.

A month passed and my fistula died. It failed to work. Dr. Yamamoto explained to me that it was because my veins are small and I failed to exercise my hand diligently. I was scheduled for a revision and because of my increasing creatinine levels, I was scheduled for an IJ catheter too. An IJ catheter is a tube coming out of the neck. The end of the tube is almost near the heart.

It was Monday, November 13, when my revised AV fistula was created. The procedure went smooth and fast. The surgeon played an Ed Sheeran Album while operating on me. We are all talking, laughing, and sharing stories. Stories like why do I need to go through dialysis, I’m so young for this kind of sickness, etc etc. To cut the story short, the avf revision was a breeze. The IJ is a different story. It hurts big time! All the procedure ended at 4:00 PM. We ate at Chowking and head back home.

November 14
9:00 AM. when we head out for NKTI. Dr. Chad Hizon instructed us to meet him before we go to the dialysis center. He wrote all of his orders and he instructed me to have a blood test. We went to Hi-precision Diagnostics, along East Avenue and let my blood tested. Since it’s a Holiday, the results were delayed. We have to get it the following morning. After the test, we went to St Benedict Dialysis Center. It’s also along East Avenue. We found this dialysis center because of Dr. Mike Manalaysay, a pediatric nephrologist, and a colleague in Kyani Philippines Incorporated. As we inquired about the payment, the admin staff asked for my PhilHealth. Fortunately, all the papers that I used in USTH were in me so I easily provided what is required.

D-Day
I was anxious. I didn’t sleep well last night. The fact that my IJ catheter is very painful and uncomfortable, the picture of me sitting on a dialysis chair bugged me so much. I am very nervous. We had a light breakfast, fixed ourselves, and went to St Benedict.

The receptionist at the dialysis center is waiting for me. She is all welcoming and hospitable. In fact, they are all hospitable. Maybe they are just being nice to people who are most likely at the end of their road. Anyway, I’m still nervous. I can hear the beat of my pulse and my hand is cold. I went inside the treatment area to pee since the only CR is located there. I thought to myself, as I walked passed the patients hooked up to the machine, “will I look like them in the future? Alive but as is lifeless?” Fear struck me again. Then the nurse called me. Weighed me in and prepared me.

130/80, not my usual blood pressure. It’s higher than usual. Maybe because I’m afraid? She “undressed” my IJ and prepared it. She clipped the two tubes, in my IJ and started the machine. Then the familiar sound of the machine sounded. I didn’t feel anything but I began to feel drowsy and fell asleep. I woke up when the session is almost over and it felt great! The nurse unhooked me and gave a shot of EPO. An injection to raise my hemoglobin.

My thoughts
I should not have been afraid of dialysis in the first place. It felt good after the treatment. Although my IJ is very uncomfortable, I look forward to the time when my avf will mature and can be used as an access.

What Lies Ahead?
May the Lord God help us and make the transplant possible. We are still looking for a kidney donor and we’re still raising funds for my kidney transplant. If you would like to help, please don’t hesitate to click this link. Thank you for reading my story! God bless you!

 

 

Here Comes the Reinforcement!

Febuary 7, 2017, 1:51 AM! A new member of my family was born! Her name is Maria Deiynne Kairos C. Oliveria. (I know it’s lengthy, but that’s what we have discerned) It means given by God in His perfect time with Mary. She weighed 3.95 kgs., and born in way of C section, because she’s a big baby girl. We would like to thank Dra. Maellen Joye Saldua, my wife’s OB Gynecologist. She took good care of Karrynne and really did a great “cut” since she is a “kikay” as she always says. After birth, Dra. Ma. Donna Bernal, Deiynne’s Pediatrician,  took over.  She also gave the best care for Deiynne.

The First Fight

Hours later, after birth, Dra Donna discovered that Deiynne’s blood sugar was below normal. We needed to buy milk (Karrynne was still unconscious and could not produce any milk) outside to stabilize Deiynne’s blood sugar. Since we didn’t bring our car, I walked 1.4 kms from Baypointe Hospital and Medical Center to the Pharmacy, since there was no means of public transport outside and it’s 3 o’clock in the morning. To cut the story short, we got the milk, gave it to Deiynne and thank God, her blood sugar stabilized.

Another thing that worried Dra Bernal was my blood compatibility with Karrynne. I am type B and she’s type O. She said that there’s an incompatibility in our blood that can make Deiynne’s skin turn yellow since Deiynne got my blood type. It’s Jaundice. (I really forgot the details here. Correct me if I’m wrong) Read more about Jaundice here. Anyway, Deiynne is a very healthy girl and she didn’t get the Jaundice. Dra. Donna suggested us to sun bathe Deiynne every morning to keep it that way.

The Miracle!

From my previous posts, I called my daughter a miracle. Why? Because she really is!

Since my creatinine is above normal, it tends to poison my sperm so, medically and technically, there’s a high chance of me being infertile.  With this condition, Karrynne still conceived.  It was an answered prayer. For people who are Catholics, Karrynne asked the help of Saint Joseph and Mother Mary to intercede our prayers. We also prayed to God and it worked! Prayer works friends! It’s not a cliche!

To honor our God for His wonderful gift, Deiynne was baptized Catholic last March 12, 2017.

Her Baptism

Deiynne was baptized at the Saint John the Baptist Parish by Rev Fr. Rene De leon. It was a very solemn ceremony and was participated with other babies  followed by the reception in our house.  I chose my closest friends and relatives to be Deiynne’s godparents namely Nert, Fer, Ace, Onel, Odette, Kuya Noel, Kuya Boyet, Jian, Rhea, Lanie, Vangie, Alma, Iris, and Sarah.

And She Grows Fast!

“Kids develop fast this day.” I always hear it from my friends, but I’m afraid it’s true. Deiynne is just only 3 months old, but it seems like she’s already 6. She already knows us. She’s becoming very talkative and reacting to every word we say.

My Reinforcement! Another Reason to Fight!

If you’re a fresh Dad, you will understand me. My daughter can wipe away all my worries, sadness, tiredness, and fears. She’s like my steroids! Before, I thought that it was just a saying and just an exaggeration but now, I am experiencing it and it’s true! How I wish to see her grow. How I wish to be with her when she enrolls in Elementary, in her prom, in her College, in her graduation, in the Aisle.

Now, my only prayer is to grant me long life to see and experience those things with my daughter. I will do everything that I can to make it possible! Next week, I have an appointment with my Doctor. Please pray for me that all are still well.  I will update you ASAP.

Thank you for reading my story. God Bless you more!

PS: My wife breastfeeds our daughter and it’s another blessing! Praise God!

Looking Ahead for a Brighter Future

November 10, 2016. Ermin Garcia, Cubao, Quezon City, Philippines

It’s been 2 months now since my last update.  Yesterday, we had an Annual Phyical Examination at the CFC Global Mission Center where I work. I am anxious about the results, especially how high my creatinine level is. As you know we (me and my doctor) are monitoring my creatinine so that he would know whether I need a fistula or not “yet.” My recent result was 400+ and I hope and pray that miraculously, it would go down or stay as is. Please pray for me.

First time here? Read my story.

So what happened last Ocotber?

Since I am allergic to the change of weather, my allergic rhinitis kicked in mid October. It started with a simple cold and developed to asthma. It was a very challenging week since I didn’t get a good sleep. Thankfully it got better the last week of the same month. 

November 1, 2016

This year’s All Saints day (November 1) was very memorable to me since it was the first time I went to the cemetery to see the remains of my recently deceased father. It has been a tradition here in the Philippines to go to the cemetery every All Saints day to light a candle and pray for the souls of our dearly beloved. Me and my wife pondered on the shortness of life, how time flies, and the life after death.   It was really an enlightening conversation.

Read what happened to my father (Tatay)

The fight ahead

I will clarify the issues about my donor. First, the pre-matching blood tests concluded that I am negative at Cytomegalovirus (CMV). So what are the implications?

  1. My donor must be negative in CMV too in order to avail the PhilHealth’s Z package. The Z-package will give me 600,000PHP for the transplant. Unfortunately, my donor is positive, but still we can continue the transplant without the discount. Learn more about PhilHealth Z-package here.
  2. If we continue the transplant, it would be inevitable for me to get infected with CMV causing pneumonia, etc.

Secondly, since my donor is “living and non-related” (meaning we are not 1st degree related), an affidavit must be signed by a witness stating that he is donating freely without payment or anything in accordance with Administrative Order 2010-0018.

The problem is he can’t find any witness to sign the affidavit. His witness must be a close family member.

What are my options?

Two days ago, I had a one to one talk with our Ninang Bernie Cuevas with regards to my doctor’s advice. It was a short but fruitful conversation. She also knew Chad, my doctor, and she believes that Chad’s suggestion was a very personal yet professional advice. Since Chad is a family friend, he would not suggest anything that would harm me. Chad is suggesting for me to go to charity. Ninang Bernie  told me to weigh the pros and cons of the situation and all led to pros. Me and my wife are discerning now, so please pray with us.

Help us to raise funds.

As of now, we had an ample amount, but still, we need more. The first release of my IamDEO shirts was a success and one of the country’s emerging apparel companies, Psalm of David Apparel, tied up and help me produce some of the 1st batch of shirts. Friends also helped out like Nert Bernardo and Rose Agrado. I am now in the process of designing new shirts so please support IamDEO tees! Check out our Facebook page for updates.

We will also have a movie screening on December 18, 2016, Sunday at SM Megamall. Let’s all together watch Rouge One, A Star Wars Story. Check out our Facebook page for updates.

Thank you so much for reading. Click here to know the details on how to help. May God bless you.

 

 

 

Crossroads Ahead

October 4, 2016. Quezon City, Metro Manila. It has been a month since I wrote my updates. For the past few weeks, I’ved been busy coming and going to NKTI for lab tests. CMV Igc, HBsAg, HCV TEST/Anti-HCV, PRA CLASS I, CLASS II & MICA ANTIBODY SCREENING, HACT REFERRAL, SYPHILIS TESTING to name some. Anyway, for people who are following me for updates, here’s what happened for the last month up to now.

September 1, 2016: Needles and X-rays

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NKTI Department of Laboratory Medicine

It was a Thursday morning when Roy arrived in NKTI. He arrived at around 7:00am and he’s very early  as always. I told him the night before, to leave Bataan at 6 or 7am since we will just have tests, but we are creatures of habit. He departed the usual time. I was an hour late and arrived at 8. Traffic is getting worse every time. We met and greeted each other and went to the canteen for breakfast. After eating, we went to the laboratory to get our blood extracted.

Inside the laboratory, we got our numbers, sat and waited. It was a very noisy place, but the noise was tolerable, though. The constant “ding” of the queue machine echoed throughout the room every second following the sound of Ate nurse shouting the number for extraction. We settled in and the noise faded away.

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Roy looks at the big needle 🙂

After the laboratory, we headed to the X-ray section. After the X-ray, we headed back home.

September 2, 2016: The Pre-Transplant Orientation

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Me and Roy at the NKTI Pre-transplant Orientation

Everyone who will undergo a kidney transplant must attend this orientation together with their concerned family member and their donor. Everything about your transplantation will be discussed here. There are doctors, dieticians, donors, transplant patients, pharmacists, and fellows who will give a series of talks on the said topic. There you can ask any questions regarding transplant and they will gladly answer it all. The pre-transplant orientation is happening every Friday, 8am to 12NN.

After the orientation, Roy went back to Bataan.

September 6, 2016: Results

I went alone to NKTI to get the result and have it checked by my doctor. To cut the long story short, all were good except for one. My result in the CMV Igc is negative.

What is CMV or Cytomegalovirus? Know more about it here.

What’s the problem if I’m negative?  1. Almost all of Filipinos have CMV. Only rare individuals are CMV negative. 2. My donor should also be negative in CMV in order for me to avail the Philhealth Z package.

Check the Philhealth Z package qualifications here.

We have to test Roy if he is also negative in CMV.

September 20, 2016: CMV tested

Roy came back in NKTI Thursday morning. We headed for the laboratory. It was just fast. We ate lunch and he went back home.

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Me and Roy at the NKTI Laboratory once again.

October 1, 2016: Results are Up!

It was Saturday. Me and my wife went to NKTI to get Roy’s CMV test result.

October 4, 2016: The News

I went to my doctor today and to cut the story short, Roy is positive in CMV. If we continue, it is impossible for us to avail the Z package. It would be a very big blow on my part.

What are my options?

My doctor and I talked about my options and told me that if we continue, we really have to prepare 1.6 million Philippine Pesos for the operation only. After transplant, the prophylaxis that will be given to me would cost around one thousand pesos per day. That’s for me not to get infected by CMV from the kidney. Another option is to endorse me to charity.

I told him what if I found someone who would want to donate and negative in CMV. He said to pray harder and don’t let miracle out of the stage. Just pray and decide on what road to choose on the crossroads up ahead.

Again, we need your help. As of now, we are able to raise almost 20% of our target amount for my transplant fund. We still need your help and donations. If you want to help us out to raise funds for my kidney transplant, click the donate button below. You can donate as low as $1! Thank you so much and God bless!

Donate Now

 

 

 

 

Still Undecided

Nanay, don’t listen to hearsays and gossips. In my  more than 10 years  of practice and experience, kidney transplant is the best and only option for Deo.” Chad, my doctor, told Nanay. “They don’t do transplant everyday compared to us. We do it everyday. Why would you think that the Philippine Government is willing to give PHP 600,000.00? It is because they know that the recipient will again become a productive member of the society and it will not be a waste” he added.

It’s 7:00 am and I already listed my name in the patients queue posted on the doctor’s clinic. I was the 7th on the list. Nanay and Roy were still on the road from Bataan. I decided to get a bottle of water from NKTI’s cafeteria and went to the admission lobby to kill time. The only place with TV and sofa where you can slouch 🙂 They arrived at 9:00 am.

How’s the matching so far?

Last time, Chad ordered Roy to have a blood exam and an abdominal ultrasound. These tests will determine if donating is safe for Roy. He told us that he will stop the matching process as soon as he sees even a smallest hint that donating kidney will harm Roy.

Roy showed the results to Chad and it was all good. The initial tests showed that he is safe to donate. More tests will be done to determine if it’s safe for us to undergo the procedure. Chad requested more tests and he insisted to take it here in NKTI. He also warned us that the succeeding tests would be quite pricey. He handed out the requests and told us to go to the Laboratory and inquire for the prices. It’s the start of the 2nd phase.

What to expect?

The tests Chad requested were all blood extraction tests for me and Roy. That includes creatinine, potassium, complete blood count, and medical abbreviation that I couldn’t understand. CMV Igc, HBsAg, HCV TEST/Anti-HCV, PRA CLASS I, CLASS II & MICA ANTIBODY SCREENING, HACT REFERRAL, SYPHILIS TESTING and many more.

I asked Chad if I need to be admitted for the tests, but he told us that it’s  just a simple blood extraction. Roy and I decided to do the tests on September 1st. If the results are good, we will continue to the next step, the phase 3. However, if not, we will look for another person with a good heart who wants to be a donor. Please pray for us.

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NKTI quotations for our laboratory tests. Details are intentionally blocked for  our security

How’s my health now?

My creatinine level is slowly rising. About 3.8 last July to 4.2 this month. The protein in my urine is still high even though I’m taking a medicine to lower it down. My anti uric acid medicine was upgraded from 4mg to 8mg but still, my uric acid level is high. My cholesterol and triglyceride levels are at normal. I was advised to maintain my drugs and continue the diet my renal dietitian gave me.

How’s Nanay?

Nanay still doesn’t want a transplant as an option. With the “horrors” she experienced with Tatay in dialysis, she would not want to go to that option either. But where else to go? We believe in miracles.

As Chad explained, there are only 3 options for me. 1st is a transplant, 2nd is dialysis, and 3rd is a miracle.  Since he’s a Catholic, he said to Nanay that he is not trashing the idea of miracles. He believed in it, but still, as he said it, we need to prepare. “We believe in miracles and I know it’s true, but for now we need to prepare” he added. Second is dialysis. We are preventing dialysis because it causes a number of complications, but I’m not saying that I will not go through it. If I badly need one, I have no choice but to do it.  Finally, the transplant.

Still Undecided

“I’m still not convinced on transplant” Nanay told Chad. “I heard a lot of negative stories about transplant patients and they take a handful of maintenance drugs” Nanay added.

“First, you must be convinced that a kidney transplant is the best option for Deo. Don’t listen to gossip and hearsays. In my more than 10 years of practice and experience, we are doing it every day, and they don’t.” Chad replied.

“But how about Deo’s Aunt with more than 400 creatinine? They didn’t require her to do the transplant?” Nanay fired back.

“Nanay, actually, we do the transplant with as low as 300 in creatinine level. As much as I would like to prevent Deo from transplant or dialysis, his biopsy tells us otherwise. We need to go for the transplant.” Chad replied with respect.

Nanay ended the “debate” with a cry of sadness and frustration, “Where will we get 2M PHP? Where will we get the money for Deo’s maintenance?”

We Need Your Help

As of now, we are able to raise 3% of our target amount for my transplant fund. We still need your help and donations. If you want to help us out to raise funds for my kidney transplant, click the donate button below. You can donate as low as $1! Thank you so much and God bless!

Donate Now

 

 

 

 

 

 

 

 

Job Well Done, Tay

Naughty,  joyful, playful, intelligent, well groomed, and one of the best. Those were the adjectives people used to describe Tatay on his Necrology service last Friday.

August 2,  2016, my father came back home to heaven. It’s a very peaceful departure as others say because he just slept and didn’t wake up. For people who read this for the first time,  tatay battled kidney disease.  His diabetes caused complications to his kidneys destroying them to the point that he needed dialysis to “live longer”. He underwent hemodialysis for more than 2 years.  Dialysis is a process in which a machine cleans the blood of the patient, preventing him/her from dying from blood poisoning.  Those sessions extended the life of tatay for 2 years and we are happy about it.  (Though, there are stories where a dialysis patient can live up to 15 years or more.) It depends on the dialysis center (maybe),  but we are still happy that it extended the life of tatay with us.

It’s a Battle Won

They said that when you’re on dialysis,  your time here on earth is already counted. Maybe that’s what Tatay meant when he told me that his time is already up. His life here on earth is up, but he started to realize that it was just only the beginning.  He learned to pray everyday. Morning and evening without fail.  He started to hear mass when he still can. We are catholics and we are happy when he started to go to confessions.  To make this short, he truly prepared for his earthly departure and looked forward to his spiritual well being. Truly, it’s a battle won.

The Gravity That Pulls Us Together –  LOVE

Kuya Boyet,  Ate Maylene and Ate Ising, my cousins, were the first ones to help prepare tatay’s wake. As soon as the news broke,  tatay’s colleagues were the first to extend their condolences. Even my friends from manila traveled here to Bataan and back to extend their sympathies at around 2:00am. Even my friends and Co workers from the Global Mission Center joined the funeral ceremony.

Teachers and principals from Bataan gathered for tatay’s necrology service. Even the provincial superintendent was there (only a selected few are being graced by his presence). The whole elementary school in our town declared half day classes to give way for tatay’s funeral. All in all,  we are moved by the mass of people who loved and supported tatay. Our family is grateful and Thankful to all of you.

His Dying Wish

One moment that I remember was when he told me to0 do everything I can to avoid dialysis.  That is his wish and I will do everything I can to avoid it.  It’s my scheduled check up last week, but because of the wake,  we have moved it this week.  I will post an update about it as soon as possible.

Pray for the soul of tatay,  Estacio Oliveria.  Please also pray for my family, especially for my health and my fight 🙂

If you want to help us out to raise funds for my kidney transplant, click the donate button below. You can donate as low as $1!

Donate Now

Thank you so much!

 

Where Am I Now?

For friends who read this for the first time,  my name is Deo and I have an end stage kidney disease.

Click this to know what happened

It has been 2 weeks since my last checkup.  I started to get strict with my diet again (to avoid being bashed online). Seriously,  to avoid dialysis for I am really afraid of it.

Me and my doctor’s plan is to set my operation next year, but will make the matching process as soon as possible.  We are currently in phase 1. We set it next year to give way for my wife’s pregnancy.  We have started the matching process now because we are afraid that the terms of Philhealth might change anytime soon.  

Read what happened in my latest checkup. 

So… What’s the latest?

The first phase of the matching is for my doctor to know whether it is safe for the donor to donate.  He (the donor) was advised to do an abdominal ultrasound and blood testing.  He already have the results.  We will bring it on my check up on the 30th, so my doctor could see it.

How’s my health?

As for me, I still feel good.  Almost all people that I meet say that I don’t look sick. Praise God for that. I am still working.  My job at the Global Mission Center of Couples for Christ is manageable.  The only thing that’s reminding me of my disease is the fact that I easily get tired, my foamy urine,  the occasional pain in my kidney area and the everyday reminders of Nanay to watch my diet. Lol

How’s my fundraising?

I need 2 million pesos for the transplant procedure.  As of now, we raised 3% of its. My friends from different places organized concerts,  bowlings, and a film showing to help. Friends and generous people started to donate.   As of now,  we are selling shirts to raise funds.  Check it out here.

Agape Concert Dinner
Bowling for a Cause
Tarzan Film Showing

Help that we look forward, too.

Please pray for me and my family. We are praying that me and my donor pass the PhilHealth z package. It is a very big help since it can take off 600,000 PHP from the operating cost.  Please pray for us.

Know more about PhilHealth z package here

We also look forward to the financial assistance program of DSWD in my hometown.  I will just need to complete all the requirements needed.

Lastly,  as Mike said,  rely first on solicitations, so we are doubling our efforts to do it.

You can help.

The funds we raised is still a fraction of the real cost.  May we ask for your kind donations to help us reach our goal.  If you have PayPal,  just click the donate button on the sidebar or you can click here to know the options on how to help us. (You can donate as low as 50 pesos)

Please include us in your prayers. Thank you so much.

 

 

 

 

 

Nanay Meets My Doctor for the First Time

TUESDAY, May 17, 2016. 7:46 pm, Ermin Garcia.

Just got home from NKTI. It was a very tiring and emotional day.

It was 8:00 am when I received an SMS from Nanay. She said that they were on NLEX already. She was with Ate Ising and Kuya Rannie. Me and my wife decided to prepare breakfast early.

It was 10:00 am when we met them in NKTI’s car park. They were all excited because this is the first time that they would meet my doctor. Nanay, of all people, was the one who was very optimistic. She’s optimistic that dialysis and transplant are not needed anymore because my latest blood test result was good. My creatinine level went down from 4.2 to 3.9. We went up to the clinic to be listed on the patient’s queue. To our surprise, there were many patients than usual and I was the 28th. One of the patients told us that she arrived at 8:00 am and yet, she was the 21st on the list. Time passed.

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Waiting for our turn. (from Left to right) Me, Ate Liezel, Reizel, Karrynne and Nanay

It was almost 12 noon, but still, only six patients got consulted. I asked the secretary and she told me to take our lunch and return by 2:00 pm. We decided to go to the nearest mall to take our lunch. After eating, Ate Ising bought a bag for her daughter and we strolled the mall to kill time. It was hot and humid outside and it was the best place to relax and stand by. Nanay was still optimistic.

It was 2 pm when we returned to the clinic. Waiting was very tiring. To cut the story short, we slept at the waiting queue and I got called at around 4:30pm.

The first meeting of Nanay and Chad, my doctor, was a bit heavy. I know that she was rating and assessing him silently. She did all the talking and bombarded him with all her questions. What would be better? What would save me? What would save me from the situation my father is in right now. Are dialysis and transplant avoidable? As Chad replied to all of her questions, she started to feel the gravity and the reality of the situation. She began to cry.

My heart broke when I saw Nanay cried. All the things that made her cry (because of me) flooded my memory. I suddenly realized that all this time, I always brought sadness to her life. I told this to a friend and he said to stay positive and it’s not too late. He was right and I moved on. It was good that Ate Ising came because she kept Nanay calm. After a short burst of cry, she calmed down and regained her composure. With a firm but a gentle voice, Chad told her that there is hope. That she doesn’t need to feel down because there is hope. There is a cure. It’s kidney transplant.

His opinion/diagnosis did not change. I need an urgent transplant to avoid complications. My creatinine levels are rising and we don’t want to gamble. Chad said that it’s harder when we wait for my creation levels to fully arise than opt for a transplant than to transplant now. He also told us that it is possible to go to dialysis first before transplant but it has many complications. In short, the best option is to transplant now.

There were many blessings right after the consultation. Nanay started to take it positively and her optimism returned back. She pleaded Chad to take care of me and Chad promised to do so. It was 6:15 pm when they left NKTI.

It was a very difficult scene to watch Nanay cry. I know how that feels. I’ved been there when I first knew my disease. But, it was a very positive experience when Chad reached out her hand and affirmed her that he will take care of me.

I bet Nanay is okay now. He met my doctor and had a heart to heart talk with him. I bet she would have peace of mind now. Please pray for her as you pray for me. Please pray for my family.

Thank you so much for reading 🙂

“Why Do You Fight, Deo?”

Last week, my good friend, Khong, messaged me on Facebook and asked, “What are your plans now? What will you do? What are the options? Whom do you fight this battle for?” His last question retained in my mind. To whom do I really fight this battle for? There were so many reasons that I have mentioned, and here are some parts of it:

“What are your options, Deo?”

My doctor said that as of now, there are only two options, go for dialysis or opt for a kidney transplant. We decided to go for the latter. Why? First of all, because of a better quality of life it promises. In dialysis, I would be hooked to a machine that cleanse my blood for 4 hours, 3 times a week. Secondly, I’m still young and there are plenty of things I still want to do. Third, it’s my parents wish not to undergo dialysis. And lastly, my doctor suggests that it is better to have it than to choose the other one.
So what is my decision? I must go for a kidney transplant.

“So this fight is for whom, Deo?”


First of all, I am fighting for my wife and my marriage. 

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Me and my wife

I just got married to a beautiful woman in December of last year. Our marriage is very young. We have a lot of dreams and we are looking at a bright future ahead of us. I know that there’s no reason for me to surrender.  I believe that with the help of God, those dreams that we dreamt and planned together, will become a reality. I also believe that this is just a hard start and good things will follow. With the help of God, we can surpass everything.

My wife is a very strong woman. When I first knew about my disease, she’s the only one that comforted me. She stayed strong. She acted as my foundation as I slowly build mine. With that, I honor her a lot and she’s one of the reasons why I fight this battle.

I fight for Nanay

Nanay is a very tough woman. My aunts always tell me that she is the strongest of them all. However, being a wife and a mother, I know that somehow, giving her heartache, such as this, could definitely tear her apart. Tatay has been already in this situation, so why am I to join.

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Nanay and me

I can see the hardships of Nanay as she takes care of Tatay. As I shared before, Tatay is on dialysis treatment. I just can’t imagine what she could feel if I would be plugged into a hemodialysis machine, too. I don’t want to give her another set of burden, even though I know the fact, that in case it would happen, she will remain strong, and won’t show any pain to us. I cannot forgive myself if something bad happens to her, and that is why Nanay, is one of the reasons why I fight this battle.

I fight for Tatay

Tatay is diabetic and that’s the reason why his kidneys failed. As I’ve said earlier, he is undergoing dialysis treatment. Right now, he is doing the procedure three times a week. Three months ago, he just had two sessions a week, but his edema (water retention) got worse. Seeing his fight, it discourages me to go the same path he’s in right now. His skin color has changed. He is bloated. He easily gets tired. He even went cardiac arrest many times when in session.

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Tatay and me

I know that it’s hard for him and I know that it would hurt him to see me suffering, too. That is why, this fight is for Tatay, too.

I fight for my friends.
The support I get from my friends are phenomenal. The moment they knew about my disease, they offered help as soon as possible. They even mobilize themselves to help me do fundraisers. They are one of the reasons I fight this battle.

I fight for my service.
I was in the community of Couples for Christ since I was in High School. I started as a CFC Youth for Christ and now, I’m a full time missionary worker of CFC Global Mission Foundation.  I believe that God did not give me this disease if I can’t win over it. I want to serve more. I want to fight serving the Lord. If I go down, I will go down while serving Him. This fight is also for service.

Help me fight this battle, friends. I wish that at the end, it is us that wins. Help me to make my hope, our fight. 

 

How to Help

First of all, thank you so much for showing your interest in helping us! Here are the ways to help us out:

Option 1: If you want to help us raise funds, kindly click the donate button on the sidebar. Don’t worry, it’s PayPal and it’s secure. You can donate as low as $1. Thank you very much.

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Option 2: Kindly click here to help out via gogetfunding.com.

Option 3: Kindly Click here to help us raise funds by supporting our merchandise.

Option 4: FUntitled-1.jpgor friends who would want to send their help directly to our bank account, kindly message us thru Deo’s Facebook or Facebook page. Thank you so much. (Our banks are BDO and BPI)

Option 5: As of now, we are still looking for a kidney donor. His/her blood type must be type B or type O. If you want to get updates on my journey, please subscribe here and follow us on Facebook. Thank you very much!